tag:blogger.com,1999:blog-3682325313690034350.post2365737872627161769..comments2023-10-05T09:30:46.006-05:00Comments on Baby Daylon: Day + 93--OH! THE MADNESS!!!!Jennifer Edlinghttp://www.blogger.com/profile/07828194845522082991noreply@blogger.comBlogger21125tag:blogger.com,1999:blog-3682325313690034350.post-38752702502675690252010-09-30T14:29:57.012-05:002010-09-30T14:29:57.012-05:00Just hoping you are surviving the new routine.
T...Just hoping you are surviving the new routine. <br />Thinking about you.<br /><br />CherylCherylhttps://www.blogger.com/profile/05135456666823026419noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-47317006719286444872010-09-28T21:22:54.118-05:002010-09-28T21:22:54.118-05:00YAY, Edlings!
Congratulations to ALL for being re...YAY, Edlings!<br /><br />Congratulations to ALL for being reunited again! Great job, Daylon! We are soooo proud of you! You are soooo strong, little buddy! Way to show them all the power of never giving up! You are an inspiration to us. Good luck in the next chapter of the BMT game!Bella's Blessingshttps://www.blogger.com/profile/09372603162401786615noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-74385577511031597202010-09-27T06:53:27.102-05:002010-09-27T06:53:27.102-05:00What wonderful news! So good to read you today. I ...What wonderful news! So good to read you today. I can´t even imagine the "madness" you guys are going through... but I am sure it pays when, at night, you have all family sleeping under the same roof! Great pictures of the kids, by the way!<br /><br />Make sure you are heard! Make sure the neuphrologist gets the message! You know Daylon better than anyone else. You (and Brian) are the ones who accompanied him through all his trial! That knowledge cannot be ignored!<br /><br />Just keep hang in there! Things are getting better each day! <br /><br />Continuing to pray for Daylon and your family,<br />Carla, from PortugalCarla and Matildenoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-54701044076369939992010-09-27T04:24:25.559-05:002010-09-27T04:24:25.559-05:00I'm so glad Daylon is home and you are spendin...I'm so glad Daylon is home and you are spending time as a family again. I hope they will listen to you about dialysis and his target weight. It doesn't seem right that they are ignoring his response to the treatment or the discrepancies with the scales. Love the pics of all your kids jumping on the bed :) Love and prayers, Laura V.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-91925575852396624832010-09-27T02:14:56.471-05:002010-09-27T02:14:56.471-05:00Congratulations, Daylon!
Love,
The Jones Family
...Congratulations, Daylon!<br /><br />Love,<br /><br />The Jones Family<br />Naval Air Station Pax River, MDAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-44354782799616876532010-09-26T23:14:26.427-05:002010-09-26T23:14:26.427-05:00Awseome news! Congrats on the discharge and all t...Awseome news! Congrats on the discharge and all the progress being made. You and Brian truly are AMAZING!!!! Keep being an advocate for your little guy. It really does seem weird that the doctors don't understand that the scales are weighing differently and they need to make an adjustment in what they're shooting for. Hmmm. Just weird. I'm glad you have Dr. Tolar though - let's pray that he'll get it fixed. Hang in there. You guys are doing awesome! :)Nancyhttps://www.blogger.com/profile/01636874919121542955noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-18345851005282300902010-09-26T22:56:26.030-05:002010-09-26T22:56:26.030-05:00YAY!! He is officially discharged!!!!!!!!! I am TH...YAY!! He is officially discharged!!!!!!!!! I am THRILLED for you guys!! Being together as a family is one of lifes greatest joys :)<br /><br />Wow and I thought my day was busy!!! You guys got a great routine going on. Love the chart and the bags! It will DEFF help not to mix anything up when your a zombie in the middle of the night :) ps - Daylon looks so cute in the batman shirt and jeans :) <br /><br />Glad your writing Dr Trolar...he is always the go to guy when you needs someone to listen and back you up! I hope he can start feeling better! And YES Daylon is FAMOUS!! We all LOVE him to pieces and he has DEFF touch my life as well! <br /><br />Love the Saturday morning pictures with the kids!!I also LOVE LOVE the picture with Daylon holding the crib railing :) <br /><br />I cant express how HAPPy I am....... I LOVEd looking at your discharge picture! That you were able to leave the hospital with Daylon!! I totally cried! YAY Edling family is together now!BRIAN AND BROOKEhttps://www.blogger.com/profile/03923788198174798204noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-71964083040267616812010-09-26T17:33:33.999-05:002010-09-26T17:33:33.999-05:00Just to add to what everybody else has said, you t...Just to add to what everybody else has said, you two (three, including Daylon) are amazing. I don't know how I would handle keeping track of all the things you have to do! You are absolutely amazing and we continue to pray for Daylong and your family!<br /><br />Lots of LoveJessica Lynn Perkinshttps://www.blogger.com/profile/14855840445553628743noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-73316647143619101732010-09-26T17:28:28.014-05:002010-09-26T17:28:28.014-05:00So happy to read you are out of the hospital. Goo...So happy to read you are out of the hospital. Good to see all of your children together again. Please keep the good news coming. Blessings. sg-KSAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-82909005539902451302010-09-26T15:03:19.795-05:002010-09-26T15:03:19.795-05:00I'm so happy for all of you!! It's so tru...I'm so happy for all of you!! It's so true what that nurse said... stories like Daylon's is why we get up everyday :) I love seeing how much your family is grown, and I love Daylon making ripples in our lives!! California can't wait to have you back!!<br /><br />Nurse TanyaTanyahttps://www.blogger.com/profile/12166017323427286879noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-21702252849297774652010-09-26T11:32:37.650-05:002010-09-26T11:32:37.650-05:00Freedom for Daylon! I bet he looooves the change o...Freedom for Daylon! I bet he looooves the change of scenery and being home at last. You guys are rock stars. As far as Daylon's medicine schedule goes: WOW! I know how bad my OWN medicine schedule was when I got discharged from the hospital finally, and that was just Crohn's! Crazy stuff. I'm so glad everyone is together finally! What a joyful feeling that must be. Love you!Jess Edlinghttps://www.blogger.com/profile/18332034134637598343noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-31897817499185938482010-09-26T08:56:54.717-05:002010-09-26T08:56:54.717-05:00Hi Jenn: I am thrilled that Daylon is doing so w...Hi Jenn: I am thrilled that Daylon is doing so well and home with the family. You guys are simply amazing. I really don't know how you do it, you are so blessed. <br />Will continue the prayers that soon you can really go home where you belong.<br />Love and Peace. Leah's Nana<br /><br />p.s. Your family is so beautiful and you take such awesome pictures. Keep up the good work!!!Lindahttps://www.blogger.com/profile/15650120957253451148noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-26417757591145024172010-09-26T08:34:06.664-05:002010-09-26T08:34:06.664-05:00Yay for Daylon being home!
We are fasting for yo...Yay for Daylon being home! <br /><br />We are fasting for you guys today. Bella too. You guys are amazing parents. You are so lucky to have each other. You guys make a great team! Your other 4 are beautiful and seem to be handling all the ups and downs well. We think about you all the time.Memoryhttps://www.blogger.com/profile/06238644291623631218noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-36790353220049478002010-09-26T07:11:01.858-05:002010-09-26T07:11:01.858-05:00How wonderful for you all to be home together! Pra...How wonderful for you all to be home together! Praying those docs will start listening to the mama that pays attention to ALL The details...not just the ones assigned to her! ;)Kristyhttps://www.blogger.com/profile/12546288621924817904noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-18351283278240281622010-09-26T01:33:36.980-05:002010-09-26T01:33:36.980-05:00I had no idea the home schedule would be so full a...I had no idea the home schedule would be so full and hectic. The Saturday morning pictures are wonderful. You and Brian are such fabulous parents; we admire you. I wish we could offer more to help right now, but we're always thinkin of you.Beckyhttps://www.blogger.com/profile/16057251732943794307noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-41016830748321832872010-09-26T01:31:02.876-05:002010-09-26T01:31:02.876-05:00Such great news for you. I love you and couldn'...Such great news for you. I love you and couldn't be more happy for the way things are working/have worked out. It's amazing what God can do and each time I get on the blog I realize that God just keeps blessing and blessing. Your pictures of the kids are wonderful. What a beautiful family. I love you all so much!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-38269153620996647732010-09-25T23:47:31.287-05:002010-09-25T23:47:31.287-05:00Way to go Daylon. I'm so excited that you got ...Way to go Daylon. I'm so excited that you got to go home. That is awesome. Jen I will continue to pray for Daylons recovery but also for the Lord to help you and Brian thru this great transition. I know you guys will do great. <br /><br />Take Care,<br />Amber McLaughlin,CAThe McLaughlinshttps://www.blogger.com/profile/13131393449323517990noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-83698276006583327792010-09-25T23:29:40.585-05:002010-09-25T23:29:40.585-05:00So glad he got to come home!So glad he got to come home!jeaninehttps://www.blogger.com/profile/13732103634683943293noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-61016107457287973932010-09-25T22:33:14.059-05:002010-09-25T22:33:14.059-05:00Woo Hooo! I am so excited that he is home.
You...Woo Hooo! I am so excited that he is home. <br /><br />You are doing so well! You are getting organized and taking care of business. <br /><br />I hope the dialysis weight issue gets solved soon. It must be so frustrating to see him so drained, literally. I hope that your appeal to Dr. Tolar helps the situation quickly.<br /><br />I am so happy for you! I'll bet your extended family and ward at home are so excited! I know I am!<br /><br />It's fun to see your kids blow off some steam and be kids. What cute pictures!<br /><br />Daylon looks so peaceful! <br /><br />CherylCherylhttps://www.blogger.com/profile/05135456666823026419noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-30363031668905549372010-09-25T22:18:56.879-05:002010-09-25T22:18:56.879-05:00You have come a long way Daylon. So glad you are ...You have come a long way Daylon. So glad you are "home". :)<br /><br />Wow, wow, wow for mom and dad and that med schedule. I remember coming home with my daughter after her diagnosis and a ng tube and oxygen to go with it. It was almost like bringing home a newborn...learning the ropes with so many fears built in and no wonderful nurses there for backup. So glad you have each other...you are a wonderful team. My prayers will be with you as you "learn the ropes" once again. <br /><br />So happy your family is together again. <br /><br />Denise WiDenisehttps://www.blogger.com/profile/13295097495507100702noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-32770856966718848192010-09-25T21:57:43.651-05:002010-09-25T21:57:43.651-05:00I just have to say NOTHING about Daylon's med ...I just have to say NOTHING about Daylon's med schedule seems easy! Once again, I'm blown away by how amazing you and your husband are at parenting. Not only do you have 4 healthy kids running around, you have one HIGHLY medically needy child.. it's remarkable. I'm so glad you are all together as a family again. I come to your blog when I need a little "miracle fix" on bad days. Thank you for being my light.Emilyhttps://www.blogger.com/profile/08710118552915270569noreply@blogger.com