tag:blogger.com,1999:blog-3682325313690034350.post2842962420230892125..comments2023-10-05T09:30:46.006-05:00Comments on Baby Daylon: Day +234 -preparing to go under the knifeJennifer Edlinghttp://www.blogger.com/profile/07828194845522082991noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-3682325313690034350.post-63416412495308351752011-02-15T13:59:42.634-06:002011-02-15T13:59:42.634-06:00Love all the good news at the end of the post!!! T...Love all the good news at the end of the post!!! Thanks for posting the pics for us to see!! Its awesome! What a difference!<br /><br />I hope you can get back to the busy life and be back with your family.... sounds like you need some fresh air :) <br />I am so glad you have Dr Tolar, he seems like such a great person and doctor. <br /><br />I totally agree with this statement someone else posted:<br />EB parents are super parents with super hero qualities<br />SO SO TRUE!! You and Brian are AMAZING <br /><br />I am so sorry about his eyes....poor thing. Cant help but want to rub them.<br />Dont feel bad about glasses.... us moms always seem to forget something....or is it just me lol<br /><br />Prayers coming your way!BRIAN AND BROOKEhttps://www.blogger.com/profile/03923788198174798204noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-14213158277869784462011-02-14T11:36:59.957-06:002011-02-14T11:36:59.957-06:00Praying for Daylon.Praying for Daylon.Jeanne S.https://www.blogger.com/profile/14918703308667391406noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-59216356033028510742011-02-14T10:53:27.482-06:002011-02-14T10:53:27.482-06:00I'm praying right now for you guys!I'm praying right now for you guys!Jamiehttps://www.blogger.com/profile/09166131494462987725noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-81355033473730204202011-02-14T10:39:14.562-06:002011-02-14T10:39:14.562-06:00I am glad to hear that his surgery will be today. ...I am glad to hear that his surgery will be today. Hopefully they will be able to get all of the growth off of his tongue and it won't grow back. I'll be praying for Daylon and his surgeons today. I am sorry it's been frustrating and lonely. I know that even though my kids drive me crazy sometimes, I still miss them even if I am just getting away for a few hours to have me time. My children make me so happy even when they are driving me bonkers! :0) <br /><br />I am excited to see those skin tests. Daylon seems to be doing so good on that front. Go Daylon!!<br /><br />I also read the story in the P.E. last week. I love that they are still interested in Daylon and his progress. That's how I learned about Daylon, was thru the original story the P.E. did. My friend Winter who lives in Corona had sent me an email about the fundraisers they were doing for Daylon and that got me going. Hopefully, their continued interest in Daylon and his progress will allow for lots of people to become aware and possibly it can help raise money for a cure. <br /><br />Looking forward to hearing Daylons post surgery update.<br /><br />Lots of Love,<br />Amber McLaughlin, CAThe McLaughlinshttps://www.blogger.com/profile/13131393449323517990noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-62779227974119051762011-02-14T09:40:05.732-06:002011-02-14T09:40:05.732-06:00Hi Jennifer!
Sending lots of prayers your way as ...Hi Jennifer!<br /><br />Sending lots of prayers your way as Daylon goes in for surgery today. My son, Luke, had surgery the other week (because we haven't spent near enough time at the U of M with Molly this year!) to have his adenoids done and some other stuff, but his doctor was Dr. Rimmel too. I agree with Dr. Tolar, I think he is a great doctor. Quieter than what I like, but he gave us all the facts/details we needed and I could tell he was good. I know how hard it is to start with different doctors when your kid has an extensive medical history, so thought I would give you my 2 cents on him:) LOL! <br /><br />Take Care!<br /><br />Julie Williams<br />Foreston, MN<br />www.caringbridge.org/visit/mollywilliamsAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-7851238317861832732011-02-14T09:39:18.762-06:002011-02-14T09:39:18.762-06:00I can imagine you are missing the madness. The co...I can imagine you are missing the madness. The couple of times I have been away from my kids I have missed them like crazy too. It's got to be worse since you are in a place where they have been with you.<br /><br />Medical people, Daylon and YOU will be in my thoughts and prayers today. <br />((Hugs))<br /><br />CherylCherylhttps://www.blogger.com/profile/05135456666823026419noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-45994755746164751032011-02-14T09:33:41.231-06:002011-02-14T09:33:41.231-06:00Just watched "My Skin Is Killing Me" and...Just watched "My Skin Is Killing Me" and cried the whole time. I am in awe at what your little guy is able to endure and his strength. <br /><br />EB parents are super parents with super hero qualities. <br /><br />My prayers are with you and Daylon. He is such a cute kid!!! Sending you lots of strength.<br /><br />Here is another thing.....parents of a special needs child have so much love that I think they get extra special lives because of the GOODNESS IN THEM.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-7949054330660029812011-02-14T06:41:10.385-06:002011-02-14T06:41:10.385-06:00So glad to see the update to know when things are ...So glad to see the update to know when things are happening for your little man!!! He is so adorable!<br /><br />The biposy results are amazing and so promising! I am so glad these doctors are working so hard to create a way to make life easier for all these EB kids.<br /><br />I'm praying for Daylon, you and the rest of the family throughout the day. As hard as it is for you, I cannot imagine how hard it must be for his dad being so far away.<br /><br />Praying for wisdom for the docs/medical team.<br /><br />Kim M, Waterford, MIKim Mhttps://www.blogger.com/profile/08352489657428563463noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-91426190231756485402011-02-14T04:24:46.442-06:002011-02-14T04:24:46.442-06:00Stay strong, Daylon is an amazing little man and h...Stay strong, Daylon is an amazing little man and he will come through this!!<br />Love to you both<br />Shana<br />(Australia)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-44462066123460825672011-02-14T00:14:38.012-06:002011-02-14T00:14:38.012-06:00Our prayers are with you and Daylon's name has...Our prayers are with you and Daylon's name has been put on the Temple prayer rolls. We also include, every night, asking for your peace of mind and strength and stamina to get you through this...both you and your family since you're seperated at this time. Father will bless you and guide the doctor and all that will care for him in any way.<br />Our love to you,<br />Cathy and Theresa in UtahCathy P.https://www.blogger.com/profile/08045038973532568388noreply@blogger.com