tag:blogger.com,1999:blog-3682325313690034350.post3556180660427859784..comments2023-10-05T09:30:46.006-05:00Comments on Baby Daylon: hospital updateJennifer Edlinghttp://www.blogger.com/profile/07828194845522082991noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-3682325313690034350.post-71095613113803458672011-04-03T15:38:03.796-05:002011-04-03T15:38:03.796-05:00Praying that Dylan is recovering and doing better....Praying that Dylan is recovering and doing better.Nicolehttps://www.blogger.com/profile/04595099393803175375noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-3493931370414229492011-04-01T22:50:43.505-05:002011-04-01T22:50:43.505-05:00ugh I am sick and teary from these last two posts,...ugh I am sick and teary from these last two posts, what the heck is going on in our culture these days that people who sign up to help others medically hurt little babies b/c they are too proud, busy, etc to slow down and listen (and believe)! prayers for you and your family. (and the medical staff--that they might have compassion and SLOW DOWN and LISTEN).Jamiehttps://www.blogger.com/profile/09166131494462987725noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-5866990046403260192011-03-31T16:58:47.861-05:002011-03-31T16:58:47.861-05:00I'm glad you're doing a little better over...I'm glad you're doing a little better over there...I pray for you and your family all the time. I'm definately a fan of Daylon's, he is a super star in my book...all EB kids are!The Lewis Familyhttps://www.blogger.com/profile/09034015869058020084noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-72143310975358844212011-03-31T09:57:12.311-05:002011-03-31T09:57:12.311-05:00We were so happy to hear that Dr. Tolar is back on...We were so happy to hear that Dr. Tolar is back on the case. Hopefully he will shape up the staff at CHOC in the care of Daylon. Glad to see he is doing alittle better. Sure hope his fever stays done and the the infection gets under control so you can go home real soon and be together as a family with the other kiddos. You are such a wonderful Mother and so loving, caring and so strong. Your kids are so blessed to have you and Brian as their parents and both of you are trruly blessed to have such precious children. You are truly a eternal family and blessed by Your Heavenly Father. He Loves You so much and so do we. The kids are so blessed to have such great grandparents to help in their care and for the love they have for them. What a true blessing. We are so sorry that Daylon is going thru so much. Daylon is a true child of Heavenly Father and is Loved so much. Daylon is really a strong determined boy and a real Superman. He has really overcome so many obstacles and is a real miracle. We miss the kiddos and love these precious children. Can't wait to see them. You aree in our thoughts and many prayers, and we continue to pray for Daylon to get better and come home.<br />Hang in there Superman, We Love You. Take Care and hang in there. Hopoe to see you real soon. Hope you can get some well needed rest.<br /><br />All Our Love;<br /><br />Myrna & Dwight CAAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-10964074352754938072011-03-31T07:21:52.511-05:002011-03-31T07:21:52.511-05:00I am very disappointed in the way the staff there ...I am very disappointed in the way the staff there is handling your situation. And am very grateful you have some doctors coming in the help Daylon's condition. I am not in the medical field but I think if I was I would take time to learn what you as a parent are letting me know. Sometimes I think people think they have alot of knowledge in the profession they are in and forget that being in this field requires alot of bedside manners.I realize it is their job but it takes compassion also to do it. And from what I am hearing here they are not showing you very much dedication to help Daylon condition even if they don't know too much about it. I am so sorry that Daylon is going through so much. I continue to pray for you and Daylon. Sending your sweet angel many gentle (((hugs))).Gildahttps://www.blogger.com/profile/02303055661001498091noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-45441452467493939132011-03-31T00:16:53.397-05:002011-03-31T00:16:53.397-05:00Yes Lord, please get Daylon and parents home quick...Yes Lord, please get Daylon and parents home quickly. Get all the family together so that each member is happier and healthier. sg - KSAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-29636828115880166612011-03-30T23:09:49.894-05:002011-03-30T23:09:49.894-05:00Tanya,
You are absolutely amazing and we are SO gr...Tanya,<br />You are absolutely amazing and we are SO grateful for all your help! Don't apologize for a second!<br />We love you!<br />JenniferJennifer Edlinghttps://www.blogger.com/profile/07828194845522082991noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-63526020375421008962011-03-30T23:00:22.533-05:002011-03-30T23:00:22.533-05:00I pray you are in the middle of "that moment&...I pray you are in the middle of "that moment" VERY soon!!! You are such a beautiful mother and your love for your children is a blessing to witness! Praying your lil' fella is feeling all better and back home soon!Kristyhttps://www.blogger.com/profile/12546288621924817904noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-29504902716800456862011-03-30T22:03:48.840-05:002011-03-30T22:03:48.840-05:00Oh Jenn :( I'm sooo sorry you are having to g...Oh Jenn :( I'm sooo sorry you are having to go through this!! I wish I knew how to better educate everyone, it's not ok to do harm because of lack of understanding (again and again)! I hope you get out of there soon!! And I apologize for everyone who hasn't!! I wish I were better at educating the nurses and staff :( You're all in my prayers!<br /><br />TanyaTanyahttps://www.blogger.com/profile/12166017323427286879noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-14647386673886962952011-03-30T21:12:28.299-05:002011-03-30T21:12:28.299-05:00Ugh! I can't believe they don't even apol...Ugh! I can't believe they don't even apologize! Hope his fever stays down so you can head home soon!jeaninehttps://www.blogger.com/profile/13732103634683943293noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-82113303684881966412011-03-30T20:36:59.385-05:002011-03-30T20:36:59.385-05:00Yay for Dr. Tolar, Tanya and Dr. Buchbinder to the...Yay for Dr. Tolar, Tanya and Dr. Buchbinder to the rescue!<br /><br />Boo for ignorant medical staff calling his condition a "rash!" Really? Like you'd put your child through a BMT for a rash? Silly people...use your heads!<br /><br />Praying you guys will get to go home soon.Angeliquehttps://www.blogger.com/profile/06066493949169391617noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-78967821869782625182011-03-30T20:10:07.554-05:002011-03-30T20:10:07.554-05:00I get exhausted just reading what Daylon and you g...I get exhausted just reading what Daylon and you go through. I'm so tired dealing with a dying father and sick friends, and they are all in different states. You are awe inspiring. Sending prayers as always...<br />Jan (one of your devoted blog family)Jan's Bloghttps://www.blogger.com/profile/04836898894139605216noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-63205508491942136582011-03-30T18:41:49.731-05:002011-03-30T18:41:49.731-05:00Wow, what a full few days it has been.
I am so g...Wow, what a full few days it has been. <br />I am so glad that you have some heavy hitters on your team. I am hopeful that more people can learn about this. <br />It is so sad that medical people can be so, well, dumb for lack of a better description. No offense to those who do such a great job each day.<br /><br />Well gotta run, my son just vacuumed up the yo yo string and smoked the belt. I am sure you wish you were home dealing with things like that instead of having a sick baby. <br /><br /><3 CherylCherylhttps://www.blogger.com/profile/05135456666823026419noreply@blogger.com