tag:blogger.com,1999:blog-3682325313690034350.post5123974662009407236..comments2023-10-05T09:30:46.006-05:00Comments on Baby Daylon: Day + 136Jennifer Edlinghttp://www.blogger.com/profile/07828194845522082991noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-3682325313690034350.post-8906811500001738442010-11-08T14:53:33.982-06:002010-11-08T14:53:33.982-06:00I didn't get it either. When you said home to...I didn't get it either. When you said home to stay, amazing! :o)<br /><br />Wow, so much is happening. <br /><br />CherylCherylhttps://www.blogger.com/profile/05135456666823026419noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-8747146379610144442010-11-08T11:43:35.254-06:002010-11-08T11:43:35.254-06:00He looks like he's having a good time in the b...He looks like he's having a good time in the bouncer/exersaucer thingee. Those things are great for everyone, apparently! <br /><br />He will be in our prayers for his surgery.Amberhttps://www.blogger.com/profile/09337640114633097389noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-14213102667287818762010-11-08T11:28:28.015-06:002010-11-08T11:28:28.015-06:00I didn't realize you guys were coming home for...I didn't realize you guys were coming home for good on Dec. 20! YAY!!!! We must schedule a play date for the kiddos. Daylon looks so much like Caleb in that first picture you posted. We will pray for successful surgeries for Daylon.Angeliquenoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-12335829041460265232010-11-08T10:19:55.385-06:002010-11-08T10:19:55.385-06:00Thank you for the detailed update. Daylon amazes m...Thank you for the detailed update. Daylon amazes me everyday. What a GREAT little man with a GREAT family. I've been constantly praying that he doesn't have GVHD and that his kidneys will repair themselves so he doesn't need a transplant...now I'm gonna add a successful surgery to my prayer list and ask that he not throw up so much and that he can get some nutrition down. <br /><br />I'm so glad that you guys are going to get to go home for good. That's awesome!! Merry Christmas Edling Family!!<br /><br />Count me in for the blood drive. <br /><br />Lots of Love,<br />Amber McLaughlin, CAThe McLaughlinshttps://www.blogger.com/profile/13131393449323517990noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-32523840456361199542010-11-08T08:46:09.409-06:002010-11-08T08:46:09.409-06:00Hiiii! The explanations for shunts have been grea...Hiiii! The explanations for shunts have been great! Just one more word- they can last a long time or "fail" and have to be replaced after no time at all. They have to be replaced for two main reasons: they clot off at the end or the child outgrows it. Aka- daylon grows so the shunt isnt draining in his stomach like its supposed to. Something like 50% fail in the first year. If you make it past a year, there's a good chance he'll keep it for a while. <br /><br />You do see an immediate change in their behavior so that's good. The neurosurgeons who do it at our hospital make 3 smallish incisions. One on top of the head is usually the biggest one 1-2 inches, one small one behind the ear, and one more small one on their tummy. <br /><br />Please email me if you have any questions about what I said. (starlakaye@gmail.com) I'm so glad you're going home! I'll be there at christmastime too so you should call my parents house if anything small comes up you need help with. <3. Good luck!<br /><br />-Starla AragonStarlahttps://www.blogger.com/profile/17928638452240332867noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-18396719021819268832010-11-08T07:21:42.978-06:002010-11-08T07:21:42.978-06:00Shunts are internal, no outside draining. They do...Shunts are internal, no outside draining. They do need replaced over the years. A shunt will istantly relieve the pressure/starts draining so changes would be seen instantly. I don't mean to make light of it, but they are very common (trying to make it less scary for you...for neurosurgeons they're routine to place them). I know as a parent the thought of it is intimidating and scary as heck.<br /><br />Anyway, if the generic answers have created more questions ask away.<br /><br />So happy to see Daylon happy.<br /><br />Oh, and I have an idea. You were talking about the bood drive on Daylon's behalf and I was going to say I'd be happy to donate, but I'm across the country. Well, I'm going to donate despite being across the country! Anybody can find a blood drive or Red Cross in their neck of the woods. Go give if you can!<br /><br />Happy Monday!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-60172750141715848312010-11-08T06:48:17.928-06:002010-11-08T06:48:17.928-06:00Thank you for posting, I've been waiting to he...Thank you for posting, I've been waiting to hear how your handsome man was doing. It warms my heart to see him standing up like that! Thank you for keeping us updated and know that he is always in our prayers. Hugs.Pati @ A Crafty Escapehttps://www.blogger.com/profile/17176098739115609538noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-23271145456776999552010-11-08T06:14:26.896-06:002010-11-08T06:14:26.896-06:00One shunt success story: My grandfather, Don, had ...One shunt success story: My grandfather, Don, had parkinson's-like symptoms that did not respond to meds for a year or more. It was very scary. Finally a wise doctor discovered he had fluid in his brain, and he got a shunt. The moment he recovered from surgery, his hand tremors stopped, all of his other symptoms disappeared. He could shave again, do work around the house, and go back to his fun projects in his workshop and it changed his life. Many things he had lost coordination to do (and assumed years earlier that it was just because he was getting older) he was able to do again. I hope Don's story gives you some hope.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-30702335230853467182010-11-08T03:59:45.001-06:002010-11-08T03:59:45.001-06:00re:shunt: It is a permenent thing. The lines are...re:shunt: It is a permenent thing. The lines are inside the body. There is a small (approx. 1-2inches) in his head, a couple of 1 inch incisions going straight down his body to his stomach. There are different kinds, some have a small bulb under the skin on his head that you kind of "pump" from time to time, just like pushing a bit on his skin, this will help it drain. Every few years, it needs to be "serviced" replacing it as necessary. Usually you notice immediate change in affect and behavior. It usually carries minimal complications works great!!! The usual complications exist, i.e. infection, etc. There is minimal bleeding, pain, etc. This is a very simple explanation, hope this helps until your appointment. Compared to what the sweet little boy has gone through, this will be small!! God's best blessings on Dayon and your family!! Deb, RN (ICU)Anonymousnoreply@blogger.com