tag:blogger.com,1999:blog-3682325313690034350.post7499434732436328974..comments2023-10-05T09:30:46.006-05:00Comments on Baby Daylon: long time goneJennifer Edlinghttp://www.blogger.com/profile/07828194845522082991noreply@blogger.comBlogger20125tag:blogger.com,1999:blog-3682325313690034350.post-10703443452162767012011-06-02T11:45:06.642-05:002011-06-02T11:45:06.642-05:00I some how missed this post, and I had no idea you...I some how missed this post, and I had no idea you moved to Lake Elsinore. We live here too! My son Jack is just one day younger than Daylon, and my daughter Elly loves your older kids! (We played with them at some food place one time when we were out to eat and your Mom was there with the kids...) Please don't hesitate to call me if you need anything! What school will Keira go to next year?Joyhttps://www.blogger.com/profile/13915181562008857225noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-91173351691115201282011-05-15T13:29:38.408-05:002011-05-15T13:29:38.408-05:00I'm just getting to read this today. I wanted ...I'm just getting to read this today. I wanted to tell you that our middle son Aaron (who is 2 1/2 right now) spent an entire year at 24 pounds. (15 months to 26 months old approx.) The reason? He has asthma and he was sick with colds/wheezing/pneumonia so much that could couldn't consume enough calories to gain any wight. He was using all his calories to fight off the nasties!<br /><br />It made me think about Aaron as I was reading Daylon's latest. Perhaps if he can kick the cough once and for all he might get a chance to gain some weight!<br /><br />I'm sorry to read he's still struggling, but we continue to pray and think about you all. I hope things improve very, very soon!Anonymoushttps://www.blogger.com/profile/09433694112473521983noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-24055868919298476432011-05-06T14:45:30.025-05:002011-05-06T14:45:30.025-05:00I appreciate the update too but I hope you know th...I appreciate the update too but I hope you know that even when you can't update we pray for Daylon. We pray for him every day as a family during dinner and I pray for him every morning. I am doubling my prayers for his health, his happiness, surgery, respiratory issues, eyes, oh God. God will continue to prove his power, I know He will. Employing the help of family and friend for prayer too.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-48896721993198416752011-05-06T09:40:59.742-05:002011-05-06T09:40:59.742-05:00Jen;
Happy Mother's Day! You really deserve it...Jen;<br />Happy Mother's Day! You really deserve it, you are such a wonderful Mother. You are what Mother's are all about. You are so loving and caring. We Love You! Hope you have a very special day. You are in our thoughts and prayers.<br /><br /><br />All Our Love;<br />Myrna & Dwight CAAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-81162994599409775542011-05-05T23:09:39.620-05:002011-05-05T23:09:39.620-05:00You have been super busy. Moving is a big stress ...You have been super busy. Moving is a big stress by itself. I hope they can get Daylon to start gaining weight. That has got to be frustrating and a big worry. I wish I could have been to the fireside. I am sure it was wonderful. Hang in there. We continue to pray for you.sharon kayehttps://www.blogger.com/profile/17936038936295076070noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-28844010824169519802011-05-05T15:45:02.563-05:002011-05-05T15:45:02.563-05:00I hope Dylan gains some weight soon and that his c...I hope Dylan gains some weight soon and that his cough can subside!!! I want your family to catch a break so you all can catch your breath!! It does seem like such a whirlwind!!! I pray for you guys all the time and I often think of you!!! I love Daylon and I hope he can be doing better soon :) so he can be back to smiling laughing and enjoying life :)BRIAN AND BROOKEhttps://www.blogger.com/profile/03923788198174798204noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-72907025508496122082011-05-05T12:49:20.451-05:002011-05-05T12:49:20.451-05:00Hi Jen!
thanks for the update; when I didn't ...Hi Jen!<br /><br />thanks for the update; when I didn't hear back from you a couple of weeks ago, we got concerned, and while there are some serious issues on the table to say the least, we're relieved Daylon is still in the game fighting. I'm glad to hear about Dr. Grant yelling at the surgeon; Dr. Grant has a HUGE heart for EB kids and was a great advocate for Bella and EB when she was at CHOC. Play date just got a little trickier, but we are still here and would love to see you guys whenever it works for ya! Can you guys come to Bella's Bash on the 21st? We would just love to see you again no matter WHAT the occasion! Much love to you all! TimBella's Blessingshttps://www.blogger.com/profile/09372603162401786615noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-18294310103862934172011-05-05T09:43:19.961-05:002011-05-05T09:43:19.961-05:00Praying for you, as always. Your faith is such an...Praying for you, as always. Your faith is such an inspiration. Daylon knew what he was doing when he chose you for his parents. God Bless You. I hope we see you all at the reunion in July. Let me know if there is ever ANYTHING I can do!<br /><br />Tina ZalankaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-81947776740892702192011-05-05T03:17:33.790-05:002011-05-05T03:17:33.790-05:00Thank you so much for the update! I can only imagi...Thank you so much for the update! I can only imagine how hectic your life is. I am so sorry to hear that Daylon is still struggling with health issues. I pray that the insurance approve your trip and that the MN people sort things out for him. He is such a beautiful little man.<br /><br />God bless and keep you all. Please know that we are praying for you.Annalienhttps://www.blogger.com/profile/08695828781625481890noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-26760053825645509072011-05-05T01:34:33.484-05:002011-05-05T01:34:33.484-05:00Jen,
Cope anyway that you can. I am so sorry tha...Jen,<br /><br />Cope anyway that you can. I am so sorry that things are rough. <br />((hugs))<br /><br />CherylCherylhttps://www.blogger.com/profile/05135456666823026419noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-39829482900522942702011-05-05T01:27:12.755-05:002011-05-05T01:27:12.755-05:00Thinking and praying about/for your family!Thinking and praying about/for your family!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-4995811667061890052011-05-04T22:27:55.973-05:002011-05-04T22:27:55.973-05:00We love you, pray for you daily, and wish we were ...We love you, pray for you daily, and wish we were there to be of more hands on help.Jess Edlinghttps://www.blogger.com/profile/18332034134637598343noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-80131352231310102122011-05-04T19:59:04.401-05:002011-05-04T19:59:04.401-05:00I'm sorry you all have had such a tumultuous t...I'm sorry you all have had such a tumultuous time. Good and bad all rolled into one--but seems like that is nearly always what God gives us. I will be saying some extra prayers for all of you.Brenda is SO Blessedhttps://www.blogger.com/profile/04639355281523300983noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-43495479522717024342011-05-04T16:33:19.647-05:002011-05-04T16:33:19.647-05:00I am so sorry. You've certainly had a rough ti...I am so sorry. You've certainly had a rough time, especially lately. I'll be sure to pray for Daylon. Hang in there!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-22983682517874443022011-05-04T15:43:37.876-05:002011-05-04T15:43:37.876-05:00Oh you've been busy! We're getting ready ...Oh you've been busy! We're getting ready to move... I don't know how you do it with everything else you have going on! I agree though... sometimes you just have to plow through it without thinking or you just break down (or at least I do!)jeaninehttps://www.blogger.com/profile/13732103634683943293noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-91434147840831182612011-05-04T14:47:06.083-05:002011-05-04T14:47:06.083-05:00Our thoughts and prayers are with Baby Daylon and ...Our thoughts and prayers are with Baby Daylon and all of you. Hoping and praying that things will go good for Daylon in MN. Thinking of all of you always. Daylon is a miracle, a blessing and such a little fighter. You are such wonderful parents and such an inspiration. You have such wonderful parents and we love them and all of you dearly. It was so wionderful to see all of you on the Sat before Easter, we really enjoyed ourselves and really enjoyed the kids. They are so sweet, beautiful, precious and loving. Heavenly Father is watching over Baby Daylon and all of you at this time. Hang in there Baby Daylon! Keep Fighting you little Superman, you are truly loved. We are here if there is anything we can do for you and the kids. Take Care, God Bless, Keep the Faith. We Love all of you.<br /><br />All Our Love;<br />Myrna & Dwight CAAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-6948978347491950262011-05-04T07:31:06.473-05:002011-05-04T07:31:06.473-05:00I as soon as I saw your post I had to click on it....I as soon as I saw your post I had to click on it. I have been thinking about how Daylon has been doing. My heart goes out to you because your concern for Daylon is something I will be praying for. I am sorry to hear he has been declining health wise and just know even though we don't hear from you. You all and especially Daylon in our thoughts and prayers.Gildahttps://www.blogger.com/profile/02303055661001498091noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-68655593697312792352011-05-04T07:11:34.976-05:002011-05-04T07:11:34.976-05:00I so appreciate the update but you owe us no apolo...I so appreciate the update but you owe us no apology. I think of the times you had so much time on your hands because you were confined to a room and had so much help with the medical team. I think it is great that you are home and don't have time to blog because you are caring for your family (and hopefully for yourself).<br /><br />Please know that your prayer warriors are out here praying for Daylon and for you as you care for him. Also continuing to pray for the medical team surrounding him. <br /><br />When you go to MN, you will be in the new hospital. Will be praying all goes well for you.<br /><br />Praying in Waterford, MI<br />Kim MKim Mhttps://www.blogger.com/profile/08352489657428563463noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-13460155892332951492011-05-04T06:53:37.707-05:002011-05-04T06:53:37.707-05:00Thinking of all of you lots. Thanks for the update...Thinking of all of you lots. Thanks for the update, you've definitely had your hands full. Perhaps MN will turn on the warm weather when you arrive! Safe travels.Lisahttps://www.blogger.com/profile/16708438337338146112noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-57957853485052339152011-05-04T05:21:02.972-05:002011-05-04T05:21:02.972-05:00Just know that though we may not hear from you for...Just know that though we may not hear from you for a while (and we pray things are not going badly as the cause of it) that you all continue to be in our prayers every night. This following quote is one that I came across and has helped me when things are getting tough. I'm not sure of the author:<br />"In the gospel of Jesus Christ you have help from both sides of the veil, and you must never forget that. When disappointment and discouragement strike—and they will—you remember and never forget that if our eyes could be opened we would see horses and chariots of fire as far as the eye can see riding at reckless speed to come to our protection..."<br />May you have your spirits quieted by His love and peace.<br />Cathy and mom in UtahCathy P.https://www.blogger.com/profile/08045038973532568388noreply@blogger.com