tag:blogger.com,1999:blog-3682325313690034350.post8583560672042424433..comments2023-10-05T09:30:46.006-05:00Comments on Baby Daylon: Day +36Jennifer Edlinghttp://www.blogger.com/profile/07828194845522082991noreply@blogger.comBlogger47125tag:blogger.com,1999:blog-3682325313690034350.post-25097174950905513652010-08-01T23:35:30.738-05:002010-08-01T23:35:30.738-05:00I am praying for little Daylon. I'm so sorry ...I am praying for little Daylon. I'm so sorry for his pain and for what you are going through right now. Don't give up! You are an amazing family full of love and faith. <br /><br />Believe in miracles! Blessings KimAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-44916273691393186192010-08-01T16:20:00.019-05:002010-08-01T16:20:00.019-05:00Jen and Brian, Jackie and I are so sorry about Day...Jen and Brian, Jackie and I are so sorry about Daylon. Our hearts are heavy and our cheeks are wet. You are both courageous in taking this path for your son. Know that you have done everything possible to give him a shot at a life. Hug your other little ones, cherish every moment you have with them. Stay as strong as you possibly can. If you need anything, Tim has my number. I wish there was more I could do to take away the fear and the pain.Brett & Jackie - Rafi's Parents (patient #8)http://www.rafisworld.comnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-51450020732272294342010-08-01T13:06:01.681-05:002010-08-01T13:06:01.681-05:00God is a God of miracles. I'm praying for one...God is a God of miracles. I'm praying for one for you, your entire family, and for precious Daylon. I also believe in giving thanks in ALL things. It's driven by faith. So, in faith, I'm giving thanks for what is happening now and praying that we can see and feel and know what the blessing is in this moment. <br /><br />In the book 'A Hiding Place' about two sisters in a German concentration camp, one sister gives thanks for the flees in their sleeping quarters, though she doesn't know why. Then she discovers the guards won't enter this room because of the flees, freeing her to preach the gospel to all the ladies in that room with her. It was, for her, a miracle!!!<br /><br />I'm praying for your miracle. <br /><br />Love to all,<br />Jan HallJan's Bloghttps://www.blogger.com/profile/04836898894139605216noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-51355845209025069992010-08-01T07:32:41.402-05:002010-08-01T07:32:41.402-05:00Praying for Daylon. You are a wonderful family.
W...Praying for Daylon. You are a wonderful family. <br />We hope you get your wish for this gorgeous baby boy. <br /><br />Many, many, many prayers here in CT & NY (and I am sure all over the world).<br /><br />xoxo Daylon!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-18340603290830923042010-08-01T00:15:31.565-05:002010-08-01T00:15:31.565-05:00Praying for Baby Daylon! Sutherlin, OregonPraying for Baby Daylon! Sutherlin, OregonAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-4320121095618377662010-07-31T22:30:45.146-05:002010-07-31T22:30:45.146-05:00Praying for peace and healing.Praying for peace and healing.boltefamilyhttps://www.blogger.com/profile/09178547489939649432noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-37770844823669660292010-07-31T21:39:03.807-05:002010-07-31T21:39:03.807-05:00Praying for all of you - so many unknowns, so scar...Praying for all of you - so many unknowns, so scary, so awful! Praying for miracles!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-38999777196922794582010-07-31T20:50:51.744-05:002010-07-31T20:50:51.744-05:00I've been following your story for some time n...I've been following your story for some time now, and I just weep for you tonight. I will pray for multiple miracles.Katherine @ Grass Stainshttps://www.blogger.com/profile/01258123193553569060noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-25765482897249105562010-07-31T20:49:17.688-05:002010-07-31T20:49:17.688-05:00I'm visiting from Jonah's blog. Praying t...I'm visiting from Jonah's blog. Praying that you feel the love of Jesus wrapping his arms around your family so tight tonight!Nashville TV Showhttps://www.blogger.com/profile/07233349260192922328noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-18773939340819970462010-07-31T20:22:14.639-05:002010-07-31T20:22:14.639-05:00Jennifer and Brian, I am so sorry to hear this lat...Jennifer and Brian, I am so sorry to hear this latest news. It breaks my heart and I am continuing my prayers for his full recovery. Miracles do happen and Daylon can get thru this. There is so much for your family. Please stay strong. I know someday you will hear his growl again and see his beautiful smile light up the room and you hold him in your arms and just LOVE HIM. <br /><br />Lots of love and prayers,<br /><br />Amber McLaughlin, CAThe McLaughlinshttps://www.blogger.com/profile/13131393449323517990noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-54275054169157699242010-07-31T19:30:09.300-05:002010-07-31T19:30:09.300-05:00Miracles can happen! Do not loose hope do NOT give...Miracles can happen! Do not loose hope do NOT give up FAITH! We are ALL here FIGHTING this BATTLE with you!!! Daylon you can do this, your such a strong BRAVE boy!! You have captured ALL our HEARTS and TOUCHED ALL our lives!!! I hope you can feel peace and your heart can be healed with the aching you feel. I hope more than anything you can hold and rock your baby boy again and hear his sweet drawl! We ALL are here praying to HEAVENLY FATHER to HELP HEAL YOUR BABY!! HANG IN THERE!!BRIAN AND BROOKEhttps://www.blogger.com/profile/03923788198174798204noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-72981436815176262442010-07-31T16:06:54.642-05:002010-07-31T16:06:54.642-05:00It breaks my heart to hear the news ya'll hear...It breaks my heart to hear the news ya'll heard about sweet precious baby Daylon but I have witnessed miracles happen & will be praying & hoping that a miracle happens for Daylon. My love, thoughts & prayers are with each of you. Dear God I ask for you to please give this family a miracle to witness of their own to experience & give You thanks for allowing it to happen in advance. Please heal Bella, Tripp, Jonah as well as all the EB Babies in this world.Belindahttps://www.blogger.com/profile/14809773917393412704noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-8127053678239600722010-07-31T14:48:10.875-05:002010-07-31T14:48:10.875-05:00Jennifer & Brian
after reading your post I hav...Jennifer & Brian<br />after reading your post I have to tell you I am almost speechless, and my heart is heavy. I am praying for you and for your precious baby. Your strength is inspiring to me and I am sure to many, many people. Thank you for sharing your journey with the world, because I know how painful that can be, and just plain hard to write, to even think about it... Bless your heart. We are thinking of you and praying for you. Thank God your mom is there... I am so happy that You and your husband can be there together... I was praying for that!!!<br />Please God give this family a miracle... God Speed!!! Hugs<br />Marybeth & Sam #7Marybeth Sheridanhttps://www.blogger.com/profile/00713402906380840196noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-78220381829055285412010-07-31T14:19:10.134-05:002010-07-31T14:19:10.134-05:00Hi, I am so sorry to read these hartbreaking news ...Hi, I am so sorry to read these hartbreaking news about Daylon.. God bless him.. I came across the med article that cold therapy helps a lot for brain damage and similar conditions.. Cold compresses or cold air flow around the head could reverse or treat the symptoms of brain damage.. My prayers for a lil man (xxx) Natalya Rynne ..Iam also on Facebook..we have ddebAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-54343693894827484332010-07-31T14:14:00.485-05:002010-07-31T14:14:00.485-05:00Oh, I hate this for you and especially for Daylon....Oh, I hate this for you and especially for Daylon. I am so, so sorry that you had to receive the news that you did today. I am praying for Daylon. My heart is breaking for you.. not knowing and not being able to hold your baby.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-44550422417006032532010-07-31T12:57:18.558-05:002010-07-31T12:57:18.558-05:00I'm so sorry. Our prayers are with you. Mich...I'm so sorry. Our prayers are with you. MicheleAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-45672065017258742482010-07-31T11:27:44.390-05:002010-07-31T11:27:44.390-05:00Prayers for God's strength and wisdom to do wh...Prayers for God's strength and wisdom to do what you're "supposed" to do.The Ninofrancoshttps://www.blogger.com/profile/16460837965946247707noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-64789130671885973752010-07-31T11:04:15.231-05:002010-07-31T11:04:15.231-05:00I have been following your precious Daylon and Bel...I have been following your precious Daylon and Bella from Patrice's site. I pray for all of your EB children. How great is it that through FAITH, you can turn to our Heavenly Father and ask him to wrap His arms around Daylon. He does hear prayer, and I am offering another for Daylon's recovery. Peace to you from God above.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-56366394854539544342010-07-31T10:59:46.668-05:002010-07-31T10:59:46.668-05:00Sending prayers from Utah for peace and comfort du...Sending prayers from Utah for peace and comfort during this difficult trial. What an example of faith you and Daylon are providing for so many around the world!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-39244632654759584002010-07-31T10:44:55.938-05:002010-07-31T10:44:55.938-05:00When you said your arms literally hurt because you...When you said your arms literally hurt because you want to hold you baby, I think my heart literally broke. I can not imagine how that must feel. You could not have said all of that any better. What an amazing woman you are and what an amazing family you have. You guys are taking such a risk in honor of my little boy and all the other Junctional babies out there. There will always, always be a special place in my heart for you and your entire family. FAITH is right... What else can you do but have faith? God brought you guys to this- and I believe he will bring you through it. Tim is right- as I keep telling myself, too- no doctor really knows what is going to happen. All they can tell you is what they've learned- and like you said they've never experienced this, so only God knows what's in store for precious Daylon. <br />Please give him a kiss on that sweet forehead from our family. We love you all so much and I wish more than anything I could be there to give you all a great big hug. You guys are in my every day prayers- as are in you so many peoples prayers across the country:) <br />Love love and more love-<br />Courtney RothCourtney Rothhttps://www.blogger.com/profile/01781571778358173399noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-40889244723245647522010-07-31T10:09:26.501-05:002010-07-31T10:09:26.501-05:00Submit his name in the temple prayer list and he w...Submit his name in the temple prayer list and he will recover.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-1883070800119046362010-07-31T09:53:43.677-05:002010-07-31T09:53:43.677-05:00I've never commented before but I have been fo...I've never commented before but I have been following Daylon and Bella for a while now. Daylon and your entire family have been in my thoughts and prayers since I discovered your blog. I will continue to pray for all of you and for the doctors to have the wisdom to help Daylon. Praying that you will hear his dinosaur growl soon!!!!<br /><br />Love and Prayers from New EnglandAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-64331876063886082462010-07-31T08:42:23.673-05:002010-07-31T08:42:23.673-05:00Praying for God to comfort you and your family.Praying for God to comfort you and your family.Kimberly @ Raising Oliveshttp://raisingolives.comnoreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-18037250608522804572010-07-31T07:42:01.552-05:002010-07-31T07:42:01.552-05:00<3<3<3<3 We think of you everyday and ...<3<3<3<3 We think of you everyday and pray. Love Emelie and EllyEmeliehttps://www.blogger.com/profile/13771151519850806281noreply@blogger.comtag:blogger.com,1999:blog-3682325313690034350.post-12556247850125532942010-07-31T07:00:45.727-05:002010-07-31T07:00:45.727-05:00Reading your update breaks my heart. Please try to...Reading your update breaks my heart. Please try to remember that God has a plan for your precious son. God is in control and we just have to keep the Faith. Daylon is one special little dude and we all love him.<br />It has been 7 months today that we lost our Leah and I am still heart broken. God how I HATE EB!!!!!<br />Extra prayers for Daylon, Mommy and Daddy. Feel God's healing hands and his love. Keep the FAITH!!! God Is Good. Love you guys. Love Leah's NanaLindahttps://www.blogger.com/profile/15650120957253451148noreply@blogger.com