Wow, what a morning.
Okay, so this is going to be pictureless and short, but I don't want to keep you all waiting...
Eye exam- there is some permenant scaring, but he still has his vision
GI scope- got as far as the esophagus...once she saw that it had a tear, she backed out. He will have another scope down through his g-tube in about 4 months when the site has had a chance to fully heal.
Respiratory scope- He ended up needing to be intubated so they couldn't see the airways (they go through the ET tube), but they said his lungs looked pretty good considering everything he's been through. There was a thick film covering them so they took some cultures. The doctor said he had no clue what it was, but he's testing for everything. First results should be in by tonight with the last of the results in in a couple of weeks.
G-tube- Overall, it went nicely. There was a lot of excess scarring on and around his stomach but they added a third hole and cut it back.
Biopsies were taken from his hip. Dr. Tolar was shocked at how beautiful his skin looks, but was disappointed to see how skinny he is. He said he is quote, "He's beyond skinny. It should never have gone this far." . He agreed with me that his foot is infected and took a culture from it. I think I forgot to mention this last post, but last weekend Daylon's foot was hurt and the skin just came right off. He never blisters anymore. When it comes off, it just poof! Comes off. Anyway, it's one big mess and it started to get really stinky and red. I tried the usual bleach baths, silver ointments, etc. but they were no help. His immune system is just shot (between BMT and malnutrition) so infections seem to flock to him.
Okay. So that about covers it. His room is super fancy and state of the art here in the new hospital. I kind of miss the homey atmosphere though. Oh, well. We're having fun catching up with all our old nurse and dr. friends. Brian comes in tomorrow (for our portion of the genetic testing)!! I can't wait!
I'll try to post more later.