I have a post that I've been working on every now and again, when I find a chance. Things have been busy. In the meantime, please read and comment on Tripp's and his momma, Courtney's blog. Tripp has Junctional Herlitz EB too (but much worse than Daylon is now) and is very sick. She is experiencing the moments that Brian and I have dreaded for two years and my heart just breaks for her. Thank you all so much for all the support you've offered our family over the last year. It's meant the world to us.