Daylon
took
TWO WHOLE STEPS
today!!!!
It's a miracle!
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About Us
- Jennifer Edling
- Lake Elsinore, CA, United States
- We're Brian and Jennifer Edling and we have 5 beautiful kids: Keira,8; Caleb,6; Violet and Sadie, 5; and Daylon who turned 3 in July. Daylon was born with a rare disease called Epidermolysis Bullosa. His specific form of EB is Junctional Herlitz. When contact is made with his skin, it blisters and peels or sometimes rips right off. Unfortunately, his form of EB also affects his soft tissues (organs, throat, mouth, eyes etc.) giving most kids with his condition less than one year to live. Thanks to modern technology, there's a new clinical trial Bone Marrow Transplant at the University of Minnesota for severe forms of EB. On June 24, 2010 Daylon became their first JEB patient to undergo transplant. We're all so excited at the prospect of Daylon's improved life! This is the story of our sweet baby Daylon, and life with EB.
14 comments:
YAY! that is awesome!!! :)
I am so HAPPY for you! YAY Daylon!
Yay!! that's is great!
Yeah Daylon! The Sky is the Limit!!!
Wahoo! Go Daylon Go!
That is amazing news! So happy for all of you. Yea Daylon!
Yeah! How very exciting!!!
That's Great Daylon. Go Daylon Go.
Awesome.
Myrna & Dwight ( CA )
AWESOME!!! Hey, you should look at page 58 of the February Ensign...totally looks like a Daylon doppelganger!
-Kathy Broadwater
Congrats! So exciting!
And I can comment again? Change anything? Random...but glad I can leave comments again. :>
AWESOME AWESOME AWESOME AWESOME
Yeah Daylon!!! You are a WALKING miracle!!!
Love this post so much!!!!
Kim M
Waterford, MI
He is a miracle!
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