Daylon and Erin getting ready for a bath and dressing change...at 1:30 a.m.! Daylon has us all working graveyard!
One of the things we absolutely love about this hospital is that the patient and family pick the nursing staff that works with you. You get to pick a primary nurse who is the head of your care team and each nurse is only allowed to be the primary on one patient team. Additionally, you pick three nurses for each of the three shifts worked each day. It's such a great program. We had Erin six of the eleven nights last time Daylon was admitted and we loved her. We chose her to be are primary nurse and it's working out great. She's familiar with Daylon and his bath routine which is so wonderful!! Daylon just thinks she great, so we love that of course. She's very attentive to our family and really keeps on top of Daylon's medical status. Plus, she's willing to sing during his dressing changes!! It so nice to work with the same few nurses and build up a comfort level with them. I feel like I can go to them with any problem and because they know and care about Daylon, they work immediately to resolve whatever problem is at hand.
Brian had the kids all day today and most of yesterday. I'm so impressed with how well he's handled all four kids. Taking four little ones out is no easy task...trust me! He took Violet (and the other kids) to the doctors yesterday to get her staples removed. He said she was a tough little girl and didn't even make a peep. What a blessing! Tomorrow starts a new, more intense form of chemo. We'll let you know how it goes! Giddy-up!
So many pointy things so close to his skin!