Day +46: EXTUBATION DAY!!

The big day is finally here!! Daylon was extubated! We'll let the pictures do the talking!

Daylon and his snake before the procedure

It had to take place in the room because Daylon's heart rate was in the 50's...thank you Precedex.

Whoooo, that's a lot of phlegm! FYI: that should be pink.

Turn up the suction! They're going in!! The docs actually thought the light was broken on there scope at one point, but later realized it was just COVERED in goop.

Donald, Mickey and Brian are sooo happy for Daylon.

Yeah. There are no words for this beast.

All clear! We're ready for extubation! Time to rise and shine! Daylon! Wake up, Buddy!

Let's open those peepers!... Come on!... Anytime now!...ok. um...the doctors are leaving. Seriously, Daylon! Where's that notorious spastic movement?

The Velcro is going back on?! We're working backwards here, guys! Wait! Don't go!

Tim (Bella's daddy) and Brian grab a chat in the hall. Am I crazy, or do these two look like they could pass for brothers? The sign behind them was a gift from Erin, Daylon's primary nurse! So sweet! ....Oh, there's movement! ...Back to the main scene!

http://www.youtube.com/watch?v=jbCt3CPK2Eo

Ta da!! I present Daylon's face! He's a bit puffy and on a nasal cannula, but he's working his way back!

It's so wonderful to have our little guy start to come back to us. It's fell like I haven't seen him in 6 weeks. Brian and I have been talking a lot lately about how much we miss him. We can't wait to see the old him back in action! The doctors are all patiently waiting for him to show them what he's capable of now. The next few days to a week are going to be really hard for Daylon and us as he goes through withdrawls from the pain killers and sedation. They have all told us that he will have hallucinations, vomiting, diarrhea, sneezing fits (I know, weird), and there will be times where he's inconsolable. I'm really dreading all this and I hate to see him suffer but at least we'll be moving forward. I hope to have pictures up very soon of us holding him. We haven't been able to yet. We're waiting for dialysis to end.
Edling News: Brian's home!! I love that he's back! It was so fun to go with the kids to the airport and try to scout out Daddy. I wish I had had my camera on me! It was one of those moments all remember forever! As soon as the kids saw him, they all yelled, "Daddy" and bolted for him. Brian turned around, went down on one knee and was engulfed by our four kiddos. I remember meeting my dad at the airport as a kid and being so excited. I loved reliving my childhood through them. During his visit we, of course stayed in touch, but he would also send me little text of different things I was missing from back home. I thought I'd share a few!

Brian's photo text's while in CA:

Carl's Jr.! Mmmmmmm!

Lounging in our LoveSac that we left at my parents! What a brat! :)

Brian eating dinner at his favorite Mexican restaurant, La Isla.
This picture is my favorite. It came with the text, "This is the closest I can come to bringing you flowers". I know it's cheesy, but isn't he sweet!?!

More Edling news:

Keira and I had a girls night on Friday. We had such a blast together! She got to pick any place she wanted for dinner and she chose, Perkins (think Denny's)! We had breakfast for dinner, ran to Target and stocked up on things like $1 markers and 25 cent crayola crayons and folders, then we went to the Mall of America, for a few back-t0-school sales. Let me tell you, taking my daughter to the mall, to buy clothes in these little girl stores made me break out in a cold sweat. Literally. It was shameful how much smut there is in these stores for children who wear a size 6. Not joking, I saw a pair of sweat pants that had, "You can quit staring now" written on the butt. The worst part is that it was in a store that only carried little girl sizes 5-12. Heck yeah, you can quit staring, you pedophile! Ugh. I'm officially freaking out about sending my daughter out into the world. I really had a good time with Keira though. She is such a sweet little girl. She was so excited about everything, and jumping up and down when I'd say things like, "Who would you like on your backpack?". It was cracking me up. I loved that she kept hugging me for no reason. Being a mom is the greatest.
There was a little ad lib on her menu that we did together. She thought it was a hoot and asked me to put in on our blog...how can I say "no"?! Keira filled in the blanks and I highlighted them in red. My responses are purple

An Epic Experience

I was really glad today about seeing Imagination Movers (A Disney Channel band) perform in concert. Five fans were coming to hear them sing their #1 song, "I love Taylor Swift". I was extra-excited! Smitty (the one with the cowboy hat) started the show by playing a solo on the piano. Then, he sang a song about his pet Killer Whale. The grand finale of the show featured a giant toilet (What?! She's five! LOL!) ! All the fans agreed that it was an amazing concert!
Thanks for humoring her!

This is my niece Elizabeth. I had to post this picture because she's wearing the shirt I got her and she looks adorable in it. Isn't she a cutie!?

Last bit of good news: There is a new Junctional Herlitz EB baby to join us here on the BMT floor! Her name is Elizabeth/Elle, she's eight months old and as big as a minute! She'll be the second JEB BMT! Our two families had a chance to meet and visit last night. They are such a wonderful, warm family and we encourage you all to visit Elle's blog, as she starts her BMT journey to better skin and a long, healthy life! Look for her name under "Daylon's EB Friends".