Day +65: Freedom!

You will never guess! Four great things happened today. I can't decide which order to tell you them in, so I'll do it chronologically.
 1. So, you remember how I said it's been absolutely nuts with Daylon being in pain and writhing all day the past several days? Well, he slept for 2 consecutive hours last night without waking once! Then this morning he was right back at it again but was able to be content for several minutes at a time. By this afternoon, he was hardly complaining at all. I have no clue what was wrong with him, but I'm glad it's over!! I even got him to laugh today! Well, it's more a chuckle, but you know what I mean. He hasn't laughed in a week. All he's managed is a quick smirk, lately. Other than that he's been super serious. So glad to see a peak of my happy Daylon!

Daylon watching his new duck, from the Pop's (Elle's family), dance on his diaper.

 2. Today when the BMT attending came through we talked about maybe giving Daylon a pass to the RMH as soon as next week. I told her how Daylon has always been a kid who knew what he wants and I think he'd do better if he was able to be with his siblings a little bit each day and play. She agreed and said that the new goal for Daylon was to get him a few hour pass back to the house (after dialysis and therapy) so he could start to perk up!! Woo-hoo! Have I ever told you what a huge fan of progress I am? :)

 3. This one wins for highlight of the day!! I will let the pictures speak for themselves.

Man, I love this kid!

the mask is a BIT too big

So long 5D!

That's right folks! He's outside! First time in 67 days!

the hospital he left behind! :)

Daddy and the kids came right from the swimming to visit with Daylon. I love how concerned the twins look in this picture.

This one of Caleb, just because he looks so happy! :)

4. Our hour of free time was up, at perfect timing; Daylon was just starting to become uncomfortable and be in obvious pain (or so I think). Well, I got him onto bed and got his lines situated while we waited for Kim (his nurse) to hook him back up to his IVs. I was thirsty so I went over to the bedside table and took a sip of my drink. Daylon went from moaning to full on crying and totally eyed my drink as I put it back on the table. I stood there totally shocked that he was obviously thirsty and the thought had never occurred to me! I went over to the drawer and pulled out some sterile water and a syringe and let him drink 10cc (Shhhh! Don't tell! He's not having dialysis tomorrow and the doctor would flip if he knew!). He reminded me of a little bird, eagerly eating his food. He was jerking all around trying to reach his mouth up to the syringe (it would hurt his mouth if I actually went in it) and then gobbled it up. I don't know if you can "gobble" water, but it fits the action, so I'm using it! :) When I put the water back on the counter he cried until it was hidden. Once tonight, I went in search of a Kelly clamp and when I was moving stuff around, I accidentally put it back into his line of sight and he spotted it within a few moments and started crying. Realizing that I'm a dingbat for not thinking that my son was interested in drinking, is not one of the great moments of the day. :) Do you realize what this means? He recognized water and remembered he's a fan of drinking (he didn't eat a whole lot of solids. This kids mouth blistered on an over-ripe banana), he was mentally 'there' enough to let me know he still wanted to drink and yell about it until it was hidden, and he was smart enough to remember where it was hidden and then recognized it hours later!! I'm not saying that I know he is going to be the exact same kid mentally as he was pre-transplant, I'm just saying, something is there. He's thinking. I changed my mind...this is the highlight of the day. I'm so happy.
  Modern technology is wonderful and it's amazing what man can do, but I love that in the end of the day, it still is, and forever will be, up to God. Thank you for your prayers, thoughts, and kindness. We love you. Sweet dreams.