Daylon's body has sprouted a rash this evening. I took pictures and sent them to Dr. Tolar, so we'll know more in the morning. The fear is 'Graft Verses Host Disease' or GVHD. It's where Caleb's cells attack Daylon's body because it recognizes it as foreign. It happens in 30% of BMT and is usually noticed around day +30. We're a ways out from there, but it could still happen. I'm not really sure what to think. Daylon and Caleb were identical matches, Daylon's a baby, and Caleb is older than Daylon but not old, all work in his favor to not get the disease. We'll see.
The other bad thing is that tonight when Daylon started to fuss, I went to get him out of his crib and I bumped his head on the monitor's probe. Yeah, Mother of the Year, right here. It took off several layers of skin and bled. Now it's this shinny, fleshy spot. I feel awful. It happens, I know; Still, I hate causing him pain. He's in enough already. I was so concerned about watching his IV lines (his hickman isn't sutured and on the verge of coming out) that I forgot about his head. Well, it gets worse. I sat with him on my bed, examining his wound and I forgot to watch his g-tube (it started to come out earlier today). The next thing I know, my legs all wet and when I look down, I see his g/j tube is on the bed. The. Whole. Thing. I know. From there, I spent the next hour applying pressure to the open hole, waiting for the resident to find a grown up who knows something about EB and g-tubes. Sorry, that was a little harsh. This girl had two modes though: slow and stop, and is just in her second week of BMT residency. Anyway, they ended up sticking a urine catheter in his g-tube site to keep it from closing (the hole closes super fast and he can't go under for surgery without being intubated again and Dr. Tolar isn't budging on that one. Daylon will not have surgery if he can help it). He has an IR appointment tomorrow to have it replaced, while he's conscious.
Our son is back!!!!!!!! I have no clue what happened but he woke up post dialysis a new