|"Mama! Look! The clouds are sad now!"-Sadie (I thought that was pretty cute)|
The computer broke down again, so I've been absent from the blogging scene...note to self: NEVER buy Toshiba again. Should have listened to Dad. (I'm sure he's gloating right about now) :)
Daylon has gone back and forth lately with fevers, back on forth with nausea and vomiting. I'm changing his leg bandages two to three times a day when the feeds kick back in and the diarrhea starts back up. He is one messy boy these days! He's still developing a bit more each day, although on particularly hard days, he only wakes up when he gets sick. Dr. Tolar thinks that Daylon's rash is either GVHD or an allergic reaction, but not a virus. He's getting biopsies down on the 7th and they'll be able to tell then. Please pray that it's not GVHD. For now, he's on extra steroid creams.
|Daylon and Dr. Tolar|
Today was a really great day for Daylon. He had a slumber party (ha, ha) with Daddy and then late this morning Brian came home to the Ronald McDonald house...with Daylon!!!
|Caleb is still quick to tell everyone, "I'm the donor!"|
|I can't believe they all wear the same size! They're more than twice his age!|
|She's like a little mother to him! It's so sweet!|
just click on this video. For some reason it only shows part of the screen. :(
|playing with the ball popper together<><><><><><><><><><><><><><><><><><> >>>>>>>>>>>>>>>>>>|
|His crib had become a catch all for all his stuff! Time to clear it out!|
|throwing out the binkie|
|Opening her "Big Girl" present...yes, I know it's wrapped in paper towels :)|
|Sadie and her "Strawberry Cake" (Strawberry Shortcake)|
|by the time he had to leave, he was all smiles! (Sorry, I took the flash off. It was so bright!)|
As you can see we had so much fun! Daylon really came alive being out of the hospital and playing with his brother and sisters. Brian and I just stood together laughing and enjoying the sight of our children playing together for the first time in months. Those few hours were like heaven. No matter where I've been, whether it's with Daylon or our other four children, I've always had a nagging feeling, a wandering thought of the part of our family I'm not with. Not to mention the few moments in passing that I'm able to be around Brian (when family isn't here). It's been hard on all of us to be separated. Today, we were able to live in the moment and I had forgotten what that was like. I've thought a lot lately about how I wish I hadn't taken for granted all the times we had as a family back home, where I would try to rush through the evenings to get the kids off to bed. It wasn't like I didn't realize how great my kids are, or that we didn't spend enough time with them, it's more that I took for granted all the evenings we were together as a family. By the time Brian got home I just wanted to be able to cook without having someone at my feet, to get through dinner without someone dipping their green beans in the milk, or to make it through bath time and only need to use two towels to mop up the floor. Typically during bedtime stories and songs I would remember how wonderful my kids are and how happy I am in life, but then I have just minutes left to enjoy all 7 of us together. If I can give one bit of advice tonight, it's enjoy your family. When they (your children or spouse) want your attention, put down the paper, close your laptop, put your sewing away, throw in a frozen lasagna instead of making one from scratch, and be with your family. I hope you enjoy your day. Sweet dreams.