|reintroducing solid foods with Daddy ...SHERBET! Yum!|
I just learned, from one of you, that there is a little boy in Uganda with EB. The idea of having a kid with EB in a poverty stricken country, makes me feel ill. My heart goes out to this little guy, Robert. To read his story and offer support through comments or financial, go to http://servinghischildreninuganda.blogspot.com/2010/09/meet-baby-robert-robert-is-one-month.html
Thank you for letting me know about Robert, "theitaliandyes"!
Daylon has done pretty well today. He really perks up being at home! Thankfully, he didn't need dialysis today, so we were able to go out on pass for quite a while! We played up in our apartment for a while and then went down for dinner. We ran into the Pops and the Ringgolds and he charmed them for a bit (while the other 4 went wild!) and then after dinner we went outside to play on the Caterpillar. The Pops joined us for a bit and the kids loved playing with Chloe. She's such a doll!
|Sadie, Keira, Violet, Chloe, and Caleb hamming it up!|
|Daylon was being so sweet! He LOVES being outside!|
Tomorrow is a big day for our family. The RMH has paired up with the University of Minnesota and they have chosen our family to be their "Gopher Family". Basically what that means is we were all invited to attended the U of M vs USC (I know. Brian ALMOST died.) game tomorrow as the U of M's special guests. We have a VIP lunch and pre-game party at noon, followed by a media thing at 2pm, the game is at 2:30 and we'll be watch from the sideline (I really hope my kids don't try to go long!) in our new U of M clothes! They're supposed to make some video of our family to play up on the big screen during the game. I REALLY don't like attention, but this is a once in a lifetime thing for the kids and I mean, hello, it's USC. Back home, we always look for the scrimmage game to take the kids to (tickets are upwards of $100 each and scrimmages are free. It's a no brainer) and this is going to be a million times better. All four of the older kids can spot a USC sign a mile away, so the goal the last couple of days has been to cheer on the "Gophers" ...just trying to prevent an embarrassing moment during Saturday's game! Dr. Wagner told us that Daylon needs to stay behind. :( I'm so disappointed. But, he's the boss and if Daylon is ever going to get out of here, we need to show him we can handle the bad news. Don't worry, I'll take LOTS of pictures for him, I'm sure! :)
Well, I need to hit the hay. Busy day tomorrow that starts early! Sweet dreams.
|Rachel wanted to hold him before she went on vacation...since he'll probably be discharged by the time she comes back!!!|
|Erin and Daylon playing around after pass tonight. She was cracking up at his ROAR! :)|