I traded out with Brian on Friday night and got back Saturday, so I wasn't able to post (laptop is at the hospital). Just a quick note to catch you all up...
Dr. Tolar and Dr. Stephanski (the attending on at the hospital right now) both thought that Monday is too soon for Daylon to go home. Brian and the kids are heading home as scheduled on the 20th, with the hopes that Daylon and I will be shortly behind them on the 23rd.
Daylon is off all of his drips but the blood pressure med. He had a sudden jump in vomiting again and blood pressure issues Friday night and Saturday day. He has to also be 48 hours without a fever and right now, he's almost at 24 hours. He's still vomiting old blood, but they feel it's appropriate given the JEB and intubation 6 days ago. Since his hemoglobin is stable (meaning there probably isn't internal bleeding), I'm not worrying too much.
I really want Daylon to be healthy for Christmas, but there's no rushing this sort of thing. The most important thing is that he gets better. The thought of not being with my other kids on Christmas is heart wrenching, especially because I've had to bail on them so many times the last 17 months, but hopefully I can make it up to them once we get back to CA. The best part is that we have another year with Daylon. This time last year I was praying he would last until Christmas so we could have at least one Christmas as a complete family here on Earth and look! we're getting a chance to have two! We've been so blessed.
I'll post more later (with pictures) either today or tomorrow, once things calm down. I hope you all are enjoying this Christmas season!