Day +25

Hey everyone!
Our computer broke! I'm having to use the community PICU computer. I haven't seen a keyboard like this in 15 years! Anyway, I hate to have a picture-less post, but that's what it will be today. Daylon is doing pretty well. He's on his 4th day of dialysis and they've taken off almost 5 lbs. Unfortunately, over the last 24 hours he's retained a full kg (2.2lbs). His tummy is pretty tight. His breathing has been all over the place and up until about 12 hours ago, he was on 100% oxygen. On Sat. he was actually on 100% oxygen with sats. in the 80s. His breathing has been really labored but his x-rays look the same and the blood test show that his blood gases are good. It's a mystery. It could be a fluke thing (pray for that!) or a problem with his lung circulation. The latter will involve so much stuff, I'm not allowing myself to process it. His skin is looking decent...better than I expected. His liver ultrasound was moved to Wed. so we'll know about the current status of his VOD then. Good news is: no fever, great pulse, decent blood pressure, good cell count and his bilirubin is 2.4!! Yay! Things will get better. I have faith. Please keep your prayers coming! I'll try to post tomorrow at the Ronald McDonald house with pictures! Happy thoughts! PS- Thank you all for your comments. They've meant a lot to us and I realized a few moments ago when I was reading them that I never thank everyone...Thank you!