Day +9:

Daylon's days continue to fluctuate with ups and downs. It's 2 am so I'm making this a short one. Buckle up! Daylon's airway and lungs continue to swell and tighten. He's suctioned through his breathing tube at least once hourly to try and retrieve the extra fluid at the top of his lungs. They can't go deeper than the tube without causing damage, so some fluid is always there. He continues to drain out his nose and mouth (mouth is shown in the picture). He has a good amount of blood in his secretions. His hemoglobin was 8.2 this morning so a transfusion is probably in order for tomorrow (they transfuse at 8.0). His platelet count is at 20 (transfuse at 10) so he may be getting that as well tomorrow. And when I say "tomorrow" I mean in a few hours (since it's so late now). His kidneys are functioning a bit worse today but nothing too horrible. His body is still retaining quite a bit of fluid. He was at 10.4 kg on day -7 and yesterday(day +8) he was 13.2 kg. Keep in mind that each kg=2.2lbs. Today is was 12.7 kg! Yeah! Down a bit! He's still swollen to the gills, but he's working his way down! He's kind of like a little pressure ball you can't squeeze. :) I'm posting some continue picture of his hands so you can see what all the swelling and chemo has done to them. OH! Dr. Tolar is soo impressed that he doesn't have a fever again today! Yay! Also, he's count is at .5 (or 500) today and .3 (or 300) are infection fighting cells!!! The docs. can't say enough! Thanks for all the prayers!!

before chemo during chemo

after chemo

This is my least graphic picture, sorry. I wanted you to see how one days worth of swelling is. Those bandages were not put on tightly...we just set them on him! Check out those creases!

Really quickly, we had another exciting thing happen around the Edling household. Yesterday, the kids wanted to race me down the elevator. Idea is: they take the stairs and I take the elevator and they get the biggest kick out of standing there when the elevator doors open. Anyway, when the doors open only Caleb is standing there. He starts to tell me that Keira fell when I can hear her screaming. Apparently, she realized she needed to pee and ran off towards the bathrooms with Violet. When she got to one of the game rooms and the flooring went from tile to hardwood, she fell resulting in a messy gash on her chin. One trip to the ER and 5 stitches later she's as good as new. The doctor even gave her a new book for being a good patient and not crying! What a tough cookie!