I LOVE watching this! I wanted you all to see Daylon in action! This is the day before he was admitted.
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About Us
- Jennifer Edling
- Lake Elsinore, CA, United States
- We're Brian and Jennifer Edling and we have 5 beautiful kids: Keira,8; Caleb,6; Violet and Sadie, 5; and Daylon who turned 3 in July. Daylon was born with a rare disease called Epidermolysis Bullosa. His specific form of EB is Junctional Herlitz. When contact is made with his skin, it blisters and peels or sometimes rips right off. Unfortunately, his form of EB also affects his soft tissues (organs, throat, mouth, eyes etc.) giving most kids with his condition less than one year to live. Thanks to modern technology, there's a new clinical trial Bone Marrow Transplant at the University of Minnesota for severe forms of EB. On June 24, 2010 Daylon became their first JEB patient to undergo transplant. We're all so excited at the prospect of Daylon's improved life! This is the story of our sweet baby Daylon, and life with EB.
10 comments:
Oh he is just perfect!! Can't wait to see him moving around like crazy again!
Love him!!! Miss you guys so much! Thanks for sharing!
~Jenn & fam~
What a happy guy. Our prayers are with you.
He is so precious!!! Thanks for sharing this sweet video of your lil' fella, gave me a big smile! :)
Loved the video, we watched it several times. He just so cute. And thanks for the picture of my missionary it was good to see his face. I like that your family is staying in Minnesota, there is strength in numbers, staying together will be good for all of you. I was getting sad at the thought of you being alone. We love you and thanks for sharing the video. We pray for your famaily always.
Love Susan
what a sweet little guy.
Bless his heart...
I praying for your sweet Daylon - several times throughout the day. I'm praying he can be well enough to transfer back to 5D where you can hold and cuddle him.
I'm praying for Sweet Pecious Baby Daylon as well as his family. Take care & God Bless All.
I LOVED seeing this.... I watched it a few times! He is so stinkin cute....loved seeing his happy smiling face having some fun!! He has the best Dinosaur growl EVER!! Love him :)
Thank you so much for this darling video. I have never seen him animated before. He is adorable.
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