Today was another crazy day. Here's the breakdown:
-this morning we waited around and were then told his surgery wouldn't be @ 7:30am and instead they would fit him in in the afternoon.
-we then went down to dialysis
-after we were there 20 mins., the Dr. called and said we need to come to the OR if he's going to have surgery today
-stuck in dialysis, they give us a time of 12:20pm tomorrow for surgery--not thrilled at this point
-got to the dialysis unit at 9am (keep this in mind) and clots clouded the machine.
-switch out lines, only to find out he has several clots in his central line.
-big opps moment-clots pushed into line and we watch for heart issues, meanwhile, I'm about to have heart issues
-at ONE O'CLOCK, Daylon is hooked up to the dialysis machine to start his 4 hour run
-it's decided that Daylon will also get a new Hickman and PIC line during surgery (Dr. Tolar is out of the country so he's being over ruled)-praying that the extra chance of infection won't come to anything
-Daylon's blood pressures climb to 170/100(due to infection from his tummy? Pain?) Again, I get heart palpitations :)
-dialysis ends at six o'clock and we emerge from the dark, no access to service, basement
Well, that brings us to now. Daylon's set up in his hospital bed and sleeping.Carin from Child and Family Life Services dropped off some toys and a mobile. He got to playing with them right away. It was nice to see him smile and play. He's been in a lot of pain today and it's always hard to not be able to pick him up and comfort him during dialysis. For being down there nine hours, he did great. He's such a sweetheart.
He has yet another corneal abrasion and his skin is starting to break down. It's typical transplant stuff...when there are so few cells (because it's so early after his transplant) and he gets a really large wound (ie:his belly), all the cells rush to the wound and the rest of his body suffers. He should still be able to heal quicker (benefit of transplant) and things will hopefully return to normal. I hope you all had a great day! Thank you for all your prayers! Sweet dreams.