Tuesday, November 9, 2010

surgery update- It's done!

It's been a crazy night and I'm tired, but I just wanted to give you all an update before I hit the hay!
Daylon's surgery went well. The doctor that preformed it isn't his normal surgeon and he decided not to close the hole. He left it open and will allow time to heal it.
I thought it was leaky before! HA! Anyway, they put in the n/j tube down his nose and into his gut. Before he got home, Daylon had it half way pulled out. :/ We called BMT and they gave me instructions on how to properly remove it (I feel like a nurse more and more everyday!). Tomorrow they'll come up with another plan. This is all fine with me, because I've been curious to see how he would do with no tube.
He's had all of his meds orally (for the first time since transplant) and kept them down. I just give them 15 minutes apart. He also had 1/2 a thing of spoonable smoothie babyfood over 45 minutes for dinner and 4oz banana smoothie before bed. So far NO PUKE!!! Yay! It does help that A LOT of it drains through the hole and all over him (and me), but hey!it's a start! The hole should heal very quickly. Ok. That's it from me! Thanks for all the extra prayers! Oh! Also thank you to all of you who have mentioned that you're going to the blood drive on Saturday! Someone is even going to find a blood drive on their own, since they don't live in the area! That's awesome guys! We're so thankful for your support!
Sweet dreams.
PS- I'll try to post pictures tomorrow!

14 comments:

Jessica said...

Maybe his G/J tube was just bothering him so much that it was making him puke...
Hopefully the hole closes up fast and you can see how he does on his own!

sharon kaye said...

I'm so glad things went well. I was going to go to bed and I decided to check your blog one more time. I'm glad I did. I have been thinking about Daylon and praying.

laurie Sterner said...

Been thinking about you guys all day....so happy to read this.

Chris (PEZ) said...

Thank you for the quick update! Now back on track it seems. :)
Sending love and will be giving blood Saturday in NYC.

Morissa said...

I am so glad to hear everything went well!!!!! I was thinking and praying for you guys so hard yesterday! He is such a storng little guy.

Amber said...

Good news!

The McLaughlins said...

I'm so glad to hear this good news. At 2:30pm CST yesterday I was praying like crazy that all would go well and the doctors would be skilled in their surgery...seems like my prayers were answered. I'm glad to hear the vomiting has stopped for now...Keep up the good work Daylon!!

Lots of Love,
Amber McLaughlin, CA

Mom to Many said...

Yay, I am so glad it went well!
Hopefully that opening will close up quickly.

:o)

Sara said...

I just saw that on the Dr Oz show he talked about Stents today which made me think of Daylon! here is the link: http://www.doctoroz.com/videos

Lisa said...

Hope you all had a good day today and that Daylon is feeling ok! This link also might be helpful to you, it is information from Gillette Children's Specialty Healthcare in St. Paul where I work as a pharmacy intern. They explain shunts pretty well and have some diagrams.
http://www.gillettechildrens.org/fileUpload/Hydrocephalus.pdf

Lisa said...

P.S. Ignore the hydrocephalus specific info, I just wanted you to have the info on shunts.

Anonymous said...

So glad things went well with the surgery. Daylon is one tough cookie. We were praying hard that this would go well. I guess our prayers were answered. Keep up the good work Baby Daylon, Been thinking about all of you and hoping things would go well. Hang in there Daylon, you are loved very much by all of us and your mommy,daddy, siblings and especially your Heavenly Father, he is watching over you and has you in his arms and is comforting you. Hang in there Jennifer & Brian, you are such wonderful parents and we love you. Hope to see you in Dec. when you return to CA. Can't wait. You are in our thoughts and prayers.

All Our Love;
Myrna & Dwight CA

Linda said...

Hi Jenn: Just checking in to see how your precious son has been doing. Daylon really is one tough cookie, isn't he. God Bless Him. Elle's passing really got to me. Too many EB cuties, just too many. How much do you hate EB???
Take care and Keep the Faith. Love and Peace Leah's Nana

Jen said...

Hope you are doing well...anxiously waiting for an update.